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{"id":32,"date":"2012-05-06T02:23:00","date_gmt":"2012-05-06T02:23:00","guid":{"rendered":"http:\/\/hopeinautism.com\/?p=32"},"modified":"2015-02-03T14:35:52","modified_gmt":"2015-02-03T14:35:52","slug":"tell-me-how-do-you-really-feel","status":"publish","type":"post","link":"https:\/\/hopeinautism.com\/tell-me-how-do-you-really-feel\/","title":{"rendered":"Tell Me, How Do You REALLY Feel?"},"content":{"rendered":"

Whenever I run into someone I know in public, and especially when I’m somewhere that includes many people I know (such as church), the typical walk-by greeting goes something like, “Hi (name)! How are you?” The typical walk-by response is usually, “Fine, thanks. How are you?” to which the initial greeter will answer in like kind and the two parties will continue on their merry ways. This response is given pretty much regardless of how\u00a0one is\u00a0actually<\/em> feeling, especially if how\u00a0one is\u00a0actually feeling is something\u00a0they know the greeter has neither the time nor the desire to listen to everything\u00a0one would\u00a0say if\u00a0they said how\u00a0they were actually doing, whether positive or negative, but especially negative. <\/p>\n

I do not care for this sugar-coated shallow exchange. I have certainly\u00a0participated in such (even as the initial greeter!), but I do not care for it.\u00a0It is simply not genuine and sincere. But I don’t want to dump on the poor person who is trying to be sociable by holding them hostage with my tales of woe and potential episode of tears that is sure to well up recounting my story of how I came to be caught up in such emotional wreckage. However, I also don’t want to be fake in my response, so I typically pause for a moment (sometimes I really do have to think to myself, “Self, how are you really<\/em> feeling?”) before giving a truthful, yet concise answer. It’s great when I realize in that moment that, hey, things really are great, and I really AM fine! Not just fine, but I can say I’m doing well! They always seem surprised, as if I should have known this all along, but sometimes I surprise myself!<\/p>\n

If someone were to ask me right now, “How are you doing?”, I would probably say, “Fine”. I’m not horrible, but I’m not good, and certainly not great. I would likely also add, “I’m pretty tired.” But then they would assume I had\u00a0exerted some sort of physical activity, like running or biking or cleaning or working in the yard, etc, and would then ask the fatal question, “How come?” Ah, the poor soul. Little do they know what’s coming. Had they known better, they would have accepted “fine” and moved on their merry way.\u00a0\u00a0\u00a0<\/p>\n

By the way, I really am fine, but I really am also pretty tired. As\u00a0you guessed, it is not from any amount of physical activity. I don’t believe in exercise. \ud83d\ude42 Ok, I’m kidding. I do, I just don’t do it. That’s beside the\u00a0point though. Where was I? Right. I am tired. I am\u00a0emotionally tired.\u00a0\u00a0Now, the fatal question: “Why?” Well, I’ll tell you, you poor soul since you asked for it.\u00a0Because<\/em>…<\/p>\n

\"\"<\/a>* I’ve been crying a lot lately, and that’s just exhausting
* My son has autism, and it’s just hard to deal with all the time
* I have 2 other boys and they need me just as much as Sam
* I am constantly reminded that our life is different than what I pictured and wanted
* I have been reading and reading and researching and talking with people trying to figure out better ways to work with Sam
* The methods and techniques we use with him last only a short amount of time before we have to switch to another method or technique; therefore, it feels like nothing is working
* Sam is a screamer, and my nerves are simply shot from all the screaming, crying, and\u00a0overreacting
* I keep trying to hide away, but I keep getting found
* Even though we just had a date last night, my husband and I feel distant from each other because we’re both tired
* All I can think about is autism, and anything else I try to put my mind on keeps reminding me of it
* I want to be an encouragement to other autism\/special needs moms, but I feel like I’m not a very good example if I’m whining in my blog. (Although… “it’s my party and I’ll cry if I want to”)
* I am a participant of this great thing we call “LIFE”, and autism is not the only thing in my life I am dealing with<\/p>\n

Unfortunately, sleep does not seem to help this type of exhaustion, because when I wake up, it’s still there. Autism is still there. It will always be there. It won’t always look the way it does now, but it will still be there.<\/em> I can’t erase it – and I don’t think I’d want to necessarily since it is part of my son and part of what makes him who he is. I don’t want to change him.<\/em>\u00a0I want to change it. <\/em>I can’t fix it – I can only help him function appropriately (a word I am beginning to despise)\u00a0with it, and if I were to set my sights and goals on aiming to “fix” it, I would be\u00a0neglecting to accept\u00a0him for who he is –\u00a0my sweet son\u00a0with autism who is cute, and smart and funny and quirky and cool and knows an absurd amount of information about flags and is learning an absurd amount of information about every country and culture in the world (which I am convinced will make him Jeopardy Champion one day and win an absurd amount of money) and can even recite all the countries (that he knows so far) in alphabetical order. That’s GOT to be worth something, right?<\/p>\n

Perhaps I am struggling more with the wavering\u00a0line between doing everything I can in the fight against autism to help him cope and function well and appropriately in life and just accepting him as my son with autism. He is still so young, only 6 years old, so I know that he’s not fully developed and by no means has reached his full potential. God is so not done with him yet, so I should not be either. <\/p>\n

Therein lies the\u00a0clutch. I’m just tired<\/em>.
So, how are you doing? (Really??)<\/p>\n","protected":false},"excerpt":{"rendered":"

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