I had my Facebook page open on the computer recently and my husband needed to use it. Rather than switch out users and wait forever for his own settings to come up, he just used the browser that was already open. And since FB was the last thing I was doing on the computer, it was forefront on the screen. We have many mutual friends, and being that we’re married, it’s no big deal to scroll through each others’ news feed if the opportunity presents itself.<\/p>\n
As he was scrolling through, he began to notice a certain theme. He commented, “Wow. You have a lot <\/i>of autism ‘stuff’ on here.” He was noticing the various pages that I like and follow that are centered around autism. Some are small groups I’m a part of made up of only parents of autistic kids, some are faith\/autism centered, and some are pages just like mine that are personal pages about families living with autism. His last comment hit me in a funny way. He said, “You just can’t get away from it, can you? You can’t do something without autism being involved?”<\/p>\n
My response? No. Not really.<\/b><\/p>\n
My Facebook news feed probably looks a lot like anyone else’s. I bet that whatever is most important to a person is most talked about and represented on their FB news feed. Mine does include lots of autism posts and memes. Wanna know why? Because autism is kind of a major deal in my life. My son is autistic. That is not something I can ever get away from.<\/p>\n
My husband and I have been on at least one long getaway together, several over-nighters and many dates alone while parents and friends have blessed us with babysitting. While my mind might be taken off of the kids for a while watching a movie, or spending time with my sweetheart wherever we are, autism is still there. It takes more of a backseat in those scenarios, but it’s still there. I wonder how Sam is doing when I’m not there. Autism moves to the forefront when I get a phone call asking how to handle a meltdown when they’re in Target and he wants a toy that was over the budget I had set for him. . . and forgot to tell him about. (The answer, by the way, is to just give him the toy.<\/i> It makes everything so much smoother for everyone involved, so long as he shows appropriate behavior and calms down before being obliged.)<\/p>\n
The point is, I am usually thinking of autism for a good portion of my day. Every day.\u00a0<\/i><\/p>\n
Every.\u00a0<\/i><\/p>\n
Stinkin’.\u00a0<\/i><\/p>\n
Day.<\/i><\/p>\n
\u00a0<\/i>I have this blog so I can get those thoughts out of my head, though I don’t use it nearly as much as I actually think about autism. I’m writing a book, so various themes and ideas run through my mind and out into one of the many journals I keep for brilliant idea-writing. As I scroll through my news feed, I read the struggles of other parents – mostly moms like me. I try to comment and encourage them. Sometimes I’m the one posting in the group about a grievance or achievement. Of the fifty+ articles people post about vaccines or the latest news story, or how things are going in their life with autism, I typically read a few. The articles jump start my thinking on that particular topic, or reminds me of something else about autism. That leads me to talking things out in my blog, or in a few sentences on FB to get a conversation going, which goes flat the vast majority of the time.<\/p>\n
Not to mention, I have an actual child with autism living with me. I anticipate his return home from school. I wonder what kind of day he had and what kind of evening we are going to have. He has therapy three days a week for two hours each day. Guess what’s on my mind during that time? Every Sunday, I’m wondering how to make the worship service as smooth as possible for him. Make sure he has his blank papers. Make sure the iPad is charged. Make sure the volume is muted.<\/i> What to do when he suddenly cries out, <\/i>“BEDO, BEDO, BEDO” (like the Minions from Despicable Me) or argues too loudly during the sermon.<\/i> For every event or outing, how autism will affect him in those situations is one of the first considerations I make.<\/p>\n
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